The response I got was pretty much what I expected, but it filled me with hope that people such as those at Coeliac UK are trying to make gluten free life easier for us Coeliacs.
Their reply echoed that other members of Coeliac UK had been having similar problems to me – finding that their prescriptions were either completely stopped or restricted to very few items.
By the looks of things, the problem lies in the NHS Primary Care Trusts making cutbacks, which has therefore resulted in Coeliacs having their prescriptions taken away from them.
"We see this as a soft option in their attempts to reduce expenditure, representing a short-sighted approach which could seriously damage the health of many patients. We are committed to working with PCTs to help them meet the needs of their patients with coeliac disease and DH using the well-established guidelines that are already in place. "
It would seem then, that this is currently an issue that some Coeliacs are experiencing across the country. But Coeliac UK are trying their best to see a happy ending.
They sent me some reference materials, which I shall shortly be looking over, regarding prescription guidelines for GPs. They have also offered to get in contact with my PCT regarding the issue of gluten free prescriptions.
Although I am really pleased at how helpful Coeliac UK have been, I still feel that this is such unjustice against Coeliacs. We did not choose to be on a gluten free diet – it is not just a small allergy, it is an autoimmune disease which, if we do not receive the correct food, can be serious.
It is this fact alone that makes me so angry to have my prescriptions taken away from me, and I will be looking further into this issue.